RESEARCH FIBROMYALGIA LYME DISEASE RELATED CO-INFECTIONS
The Prevalence of Borrelia and Viral Infections in Fibromyalgia Research Starting May 2019
The question of whether there is a prevalence of chronic Lyme disease in those diagnosed with fibromyalgia is of fundamental importance. When we look at the symptoms of fibromyalgia (i.e., generalised pain, fatigue, muscle weakness/stiffness, poor sleep, cognitive changes, sensory people suffering with fibromyalgia and comparing the results of the above tests with 26 non-hypersensitivity across all domains, IBS, poor temperature control and headaches) and compare them with the symptoms of chronic Lyme disease (i.e., generalised pain, fatigue, joint and muscle pain, poor sleep, cognitive changes, sensory sensitivity across all domains, and inflammation) we see an remarkable overlap.
Those of you interested in this area will also know that this constellation of symptoms can be found in other conditions, for example, autoimmune disease, chronic inflammation, chronic pain, even Gulf War Syndrome, PTSD, and Immune system dysfunction. We are interested, as part of our quest to understand and support fibromyalgia better, in the potential relationship between these conditions, believing that the symptom overlap is not coincidental.
This first stage of research starts in May 2019, with the primary aim of carrying out a systematic study of the prevalence of Borrelia (Lyme Disease) and viral infections using a cohort of people suffering with a diagnosis of fibromyalgia. Secondary aims include assessing the association of any such infections with clinical (including neurological and cardiovascular) symptoms, muscle strength, gene expression, and electrocardiographic, mitochondrial, vagal, and neuropsychological functions. We will be addressing all of the primary aims with this first traunch of work in May, and some of the secondary aims, but will need further funding to complete all the latter objectives.
In this initial phase, we will be sampling 26 people suffering with fibromyalgia and comparing the results of the above tests with 26 non-fibromylagia control subjects. The whole of the future clinic team are involved in collecting data, under the academic leadership of Professor Basant Puri. The laboratory support is by Dr Armin Schwarzbach of the ArminLabs in Germany. We have had considerable local support with this projects in terms of volunteers to help run the data collection, DN Associates providing additional office space, Bridges for Learning helping with the cognitive tests and office space if needed. On the Wight ( https://onthewight.com/) are covering our story. There has also been huge support from fibromyalgia community with encouragement, ideas and, of course, willingness to participate.
After collecting the data in May, it will probably take about a month to complete the analysis, after which we will disseminate the results via peer review journals, local publications, our website, and social media. We will be posting updates on our progress as we work through this process via our facebook page (see us at The Future Clinic). Please also feel free to write any time with questions or comments.
Research in this area is not mainstream at the moment, so finding initial funding is difficult. Our aim is to do a number of studies, funded partly by us as individuals. Once we have produced data and publications, we hope this will increase awareness and, with that awareness, more funding opportunities.
In the mean time, in addition to our own efforts, we are looking to crowd fund these initial projects and would ask if you are happy to make a donation? This can be anything from the price of a cup of good coffee (£2.50) to as much as you can afford. We are looking to raise about £10,000 in total as this will allow us to pay the full laboratory fees for the Lyme testing and develop new projects. All the money will go towards the research and the only administration costs are those of PayPal. The future clinic takes none of this money and no individual within the clinic will benefits from any donations. Please leave your details when you donate, and will keep you posted of our progress and how we use the money. Any questions, comments, or research suggestion please email or leave a message on this website.